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About Varied / Professional Official Beta Tester Lhunpaurwen - LhunieFemale/United States Group :iconwolfcreations: WolfCreations
Wolf/canine artists
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Yesterday was a good day. I finally got the answer I have been waiting so long for.  I have Ehlers-Danlos.

The missing link to my medical mystery and what is likely the root cause of the many years of medical problems in my life, from the more current to those reaching back to my childhood.

It was confirmed by a leading geneticist from Tulane Medical's genetics department after a thorough and extensive evaluation by him and his colleagues.

For those not familiar with it, Ehlers-Danlos (EDS) is a genetic disorder that effects collagen. Collagen is the main structural protein found in connective tissues of animals. Literally the "glue" that holds everything in our bodies together. It is found in everything in our bodies; Organs, ligaments, tendons, bones, cartilage, blood vessels, teeth, eyes, skin, everything.


en.wikipedia.org/wiki/Ehlers%E…


There are various types of Ehlers-Danlos, some worse and rarer than others. Ehlers-Danlos is caused by a defect in the structure, production, or processing of collagen or proteins that interact with collagen.  Some forms can be identified by genetic markers, and some have not yet been identified.  It's a lifelong, painful condition with no cure.

Yet I cannot express how relieved I feel to know it is indeed the missing link.

Having leading experts in the genetics field acknowledge my concerns and confirm what I suspected (and questioned years ago to other doctors only to be dismissed)... to finally have some kind of closure and explanation to why it never got better when doctors promised it would.

Going in expecting the worst... to be seen by another doctor who wouldn't listen and would just blame Fibromyalgia despite my clear clinical history. That scenario happened so many times over the years I lost count.

These doctors not only got my medical record ( you'd be surprised how many doctors I have seen who never did or never looked at it fully even when offered ).... and read it. All of it.

I mention something I wanted to be sure they knew ( and wouldn't know unless they read my history) and they responded not only saying they "read that in my file" but then made another random comment based on something else they read (that I had not brought up).... I almost broke down crying right there because it's been so long since I had a medical professional do that.  Know me and my full medical history.  Which is really sad to say it is not more common.

I knew in that moment it was all worth the fight to get this far.

They listened. We thanked them more than we have ever thanked any medical professional.

Now the battle for disability and Medicare really begins.

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leopardwolf's Profile Picture
leopardwolf
Lhunpaurwen - Lhunie
Artist | Professional | Varied
United States
Commissions: Open


Commission Pricing: Click Here

Terms Of Service: Click Here

Current Work Queue: Click Here



Contact Info

Email: leopardwolf@gmail.com




Payments | Tips | Donations


Payments are accepted via PayPal, debit or credit.

PayPal to: leopardwolf@gmail.com

Support My Artistic Endeavors - Patreon



If you like the things I create, and wish to help by supporting my artistic efforts, tips and donations are always greatly appreciated and accepted.

Doing all this helps me pay bills, cover medical expenses, and afford my art supplies so I can keep making neat things.

Thank you for your interest and support!






Current Residence: Louisiana, USA
Favourite genre of music: Everything and anything but rap and pure country.
Favourite photographer: Many
Favourite style of art: I'll get back to that one.
Operating System: Win XP
MP3 player of choice: iPod Classic
Shell of choice: Turtle shells and sea shells, mmm.
Wallpaper of choice: Anything not from Trading Spaces.
Skin of choice: I prefer fur.
Favourite cartoon character: Hmm. Tough one.
Personal Quote: Seek always. By searching for one thing, you will surely find another. This is the path to wisdom.



About Me:

I am a creative and passionate individual who holds a deeper, feral part inside herself. I appreciate art in all its forms. I work in vast and varied mediums and techniques. I am always open for a challenge. My strengths are in various crafts such as making jewelry, pyrography, and sculpting.

I work in traditional and digital mediums. I am always open to commission. If you can dream it, I can find a way to make it a reality.

I also enjoy writing, and have always been an avid roleplayer, mainly using White Wolf's gaming systems and inspiration drawn from the World of Darkness.

In my spare time I wander the wild places of the world. I am inspired by nature in all its forms. I love animals, and share my life with a comical cast of critters. I do a lot of volunteer work in both domestic and wildlife rehabilitation.


If you'd like to learn more about me and get to know me beyond a profile page, feel free to contact me.





LeopardWolf's Designs on Etsy - Click To Visit
Interests

Comments


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:iconnushaa:
Nushaa Featured By Owner Jul 23, 2014
because I think everyone deserves a little :love: now and then - keep being awesome! and thank you for supporting my art! I really appreciate it.
Reply
:iconheart0fink:
Heart0fInk Featured By Owner Nov 11, 2013  Hobbyist General Artist
Thank you for joining :iconinfinite-fantasy:
Feel free to submit your work to our group.
If you have any problems or if you need any help with anything don't hesitate to ask.

Please enjoy your stay. ^-^
Reply
:iconleopardwolf:
leopardwolf Featured By Owner Nov 11, 2013  Professional General Artist
Thank you!  I've seen a lot of nice art through the group so far. I wanted to get a feel for it before I started offering any submissions. I didn't see mention of a limit on how many can be submitted per day/week/etc so I planned to ask.

Would you still be in need of contributors? If so, I'd be inclined to help find more awesome fantasy work to share.

Thanks again!  :)
Reply
:iconreignewolvenshire:
ReigneWolvenshire Featured By Owner Nov 4, 2012  Hobbyist Traditional Artist
O_O! You're the sparks guy I discovered a LONG time ago, wow! Interesting to find you again through another site and animal related stuff. =p *squee*
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:iconleopardwolf:
leopardwolf Featured By Owner Nov 9, 2012  Professional General Artist
I think you might have me confused with someone else. I'm female. If you are referring to the pictures of the iron pour show that I captured, I appreciate the admiration. It was a fun event to watch. :)
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:iconreignewolvenshire:
ReigneWolvenshire Featured By Owner Feb 24, 2013  Hobbyist Traditional Artist
Ah, sorry! ^^; The iron pour show is what I'm talking about, yeah. n.n; I found it a while back.
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:iconleopardwolf:
leopardwolf Featured By Owner Apr 7, 2013  Professional General Artist
No worries! Apologies it took me this long to respond. I wanted to share the website of the head artist and his foundry team who actually do the iron pour work that I took pictures and video of.

Maybe it's the same person you thought of, maybe not. I'm sure there are other people out there that do it, but this show in particular was by Kelly Ludeking and KRL Metals:

[link]


Enjoy!
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:iconsleyf:
Sleyf Featured By Owner Sep 28, 2012  Hobbyist Traditional Artist
Thanks for the watch
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:iconleopardwolf:
leopardwolf Featured By Owner Nov 9, 2012  Professional General Artist
Of course! :)
Reply
:iconinsaneroman:
InsaneRoman Featured By Owner Sep 22, 2012  Professional Traditional Artist
Thank you so much for the watch! :D I hope all gets better for Wasabi. :meow:
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